Pediatric Palliative Care
Palliative care helps parents embrace life their child has on earth offering
support at the time of diagnosis, and through their disease progression. It includes essential care, such as warmth, comfort, and nutrition. Palliative care can also include medical treatments intended to improve a child's quality of life. This approach supports families through the decision-making before, during and through their grief process. Perinatal hospice also enables families to make meaningful plans for the child's life and death, honoring the child as well as their place in the family.
Active parenting, choices, and planning
Creating your particular time with your child, making memories with family and friends
Decisions about evaluations, testing, medical interventions, and comfort care
Integrated care for child's medical care
Comfort measures for you baby
Life review and legacy project support
Education, information and resources
Emotional and respite support for the caregiver(s)
Logistical and household support
parenting with resilience when your
child's life is expected to be brief
Perinatal Palliative Care
Perinatal hospice is a model of care, an extra layer of support that can easily be incorporated into standard pregnancy and birth care. Ideally, it is a comprehensive and multidisciplinary team approach.
Your birth preferences are a way to share your decisions and hopes with your caregivers, who can use it as a guide as your baby's birth unfolds. A birth plan is not set in stone; you can modify it and be flexible if new circumstances arise or if your wishes change. Let your baby lead the way.